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Wednesday, June 20, 2012

Long overdue update

Hey guys. This is long overdue, but here it is. Jake got out of the hospital on the 12th of June. They called me at around 10 am and told me to pick him up by 6pm. I,of course, burst into tears! How was I supposed to deal with him??? He wasn't any more fixed than when he went in! Sigh. We were trying to get him into residential care, but it was a long process.

It had been such a nice break with him in the hospital. Everyone got a breath of fresh air. It was stressful still, but there was no walking on egg shells.

Anyway, we got him back, and tried to back to normal life. And it was hard. I was emotional. I was afraid. He was trying, but was still difficult and strange. He is still defiant and won't take directions. He's broken into the electronics cabinet and taken electronics in the middle of the night. We've had to buy a huge safe. $550

He doest take care of his actions and has hurt Jim twice. Accidentally of course

When jake couldn't get into the safe, he snuck into our bedroom at 230 in the morning for whatever reason, and we caught him watching us. That was super creepy!!!

We caught him in the bathroom trying to BIC shave his head, and the top of his head is all tore up now. He need help. More help than I can give him.

I've tried every avenue I can think of. Insurance. Supplemental ECHO Insurance. Short term care. Long term care. MP's. EFMP. Respite care. School IEP. Family Advocacy. It's just a long process. Everyday I'm at some agency or office filling out papers or getting reports or looking for help. While my other children suffer. Today we get his full psychology report. And have a therapy session. And a doctors appointment.

He's too well behaved for short term. It takes a long time for long term. I just hope that nothing bad happens to us before he gets approved..... Pray for us.

14 comments:

Laura W said...

Oh Bethany what a struggle you are going through! I will pray for you. I can't imagine the emotions you go through on a daily basis. Sending you cyber hugs
Laura

sdwrdt said...

Prayers are with you. I was just thinking about you the other night (when I couldn't sleep and I realized that I hadn't "heard" from you in a while). Yours is one of the blogs I really do realize when you haven't written. Keep up the faith! Prayers from across the cornfields!

Kris Dietz said...

I'm so sorry for all that you are going through. If you need someone to talk to who has gone through something similar, please feel free to contact me anytime. Although I am not in the military and have to deal with that end of it, my son has special needs and has been abusive and we have gone through this journey as well. Please know that you are not alone (I know it feels that way and we isolate ourselves because how can you explain what your child is doing to you and your family and everything else). I truly do enjoy your blog posts and have been meaning to comment and reach out to you. I will be glad to give you my phone number as well. Please know it does get better - it's just the waiting for someone/some agency to finally jump in and help that takes forever (or at least it feels that way).

Keeping you and your family in my thoughts and prayers. Sending big hugs too!

Kris
dietzrobles at yahoo dot com

Susan Raihala said...

Bethany, I have some ideas and perhaps can hook you up with some people who can help. No guarantees, but even a few extra people who can say "been there, done that" might help.

Please email me at susanraihala at woh dot rr dot com.

PS. We're retired military.

marsie55 said...

Oh my goodness!! No wonder you aren't updating your blog .. my thoughts and prayers are with you and your family .. our boy is autistic, but luckily not violent (as yet, anyway .. although he is 14 now and hormones are racing!!) I couldn't deal with violence on top of everything else .. sending lots of hugs your way :)

WandaH said...

It is good to hear from you. Not good that your life is still in turmoil. You and your family are in my thoughts and prayers.

SharonKay said...

I am so sorry you all are having to deal with so much stress. I am praying for you all.

macfandee said...

Thanks for updating... Sending Hugs and praying hard for you and the family.

C Dawn's bucket said...

This is so very hard. So sorry!
Not sure if you are aware of http://www.kidlinktreatmentservices.com/ as a resource in identifying Residential Treatment facilities that work with your funding sources as well as your child's needs

Holly said...

Praying for you and your family!

Janet said...

Just know that I am thinking of you and admire your strength.

Janet xx

mac said...

Prayers and thoughts for u and your family.

deb said...

Keeping you all in my prayers.

melanie lashua said...

A Prayer for Healing
Lord, I come before you today in need of your healing hands. In you all things are possible. Hold Bethany's heart within yours, and renew her mind, body, and soul.

You gave us life, and you also give us the gift of infinite joy. Give her the strength to move forward on the path you've laid out for her. Give her the wisdom to identify those you've placed around her to help her in these difficult times. In your name I pray, Amen.